Starting at the end of February, I started to have extreme pain in my left eye. The doctors weren't sure what it was, and the pain eventually subsided. But, starting about 2 weeks ago, I started to experience vision loss. So I got an MRI and it turns out I have 6 legions on my brain, three of which are in progressing, but small, stages. The doctor diagnosed me with Relapsing and Remitting Multiple Sclerosis(RRMS).
What it is;
-MS is when your own immune system starts to attack the protective outer coating of the nerve fibers called, "myelin".
-This causes damage, sometimes permanent, and scars the myelin tissue, messing up and distorting the electrical impulses being sent along the nervous system.
The new symptoms the scarring is causing are; extremely hazy vision in my left eye, tingling and numbness in the left side of my face, and there is a small tremor in my right arm.
The long symptoms that I've had for years are;
-Insomnia, I've had it for 5 years at least.
-I feel bad in the heat way more than others, and I feel way better in the extreme cold than others. I've been like that for as long as I can remember.
-Fatigue for no reason. I just get that way every once in a while. Been there my whole life.
I have already started treatments in mass amounts of high dosage steroids orally, which I will continue for the next 5 days and then once every month for 6 months. It will help the swelling behind my eye, and help my immune system stop it's crap. I will start next week on a medication called Betaseron which I will take every other day by shot for the rest of my life, until a better medicine becomes available. It will help with the immune system recognizing that it shouldn't be killing my own nerve cells and preventing the myelin from scarring as much.
As of yet, there is no cure... yet!!!
The doctors say my vision should come back, the tingling should stop, and I might even get the tremor in my arm stopped! Experts are doing studies and working on new medications every day. My oldest sister, which is really weird, has been working with a Neurologist that speciallizes in M.S. in Lubbock for the last few years, and she says a pill form of Betaseron will be availlable in the next few years!
I will beat this. I won't let this change my life any more than it must. I am opptomistic and aggressive in my treatment. I am opptomistic about life. Nothing should change, and once I'm used to the medication, I should be my normal self. I hope that no one ever notices that I have this disease, and possibly one day, they will have a cure.
My only ask is that you pray for me. If you don't pray, meditate, send me your energy, or just hope for me, because all of those things will end up in the same place(heaven), at least I think so!
If any one has any questions or thoughts, just ask them! Don't be afraid to talk to about it! I'm doing great mentally and physically and will respond to everything that anyone asks!!!
gamer30hrplus
My dad and grandfather had M.D. my dad died at the age of 43 from it. my grandfather was 60 something when he died from it. my dad was in a wheel chair when he was 40 years of age. both were born with it both died from it. for awhile before my dad was put in the nursing home i tried my best to take care of him. at age 41 he was in the nursing home.
Shintoku (Updated )
Musular Distrophy and Multiple Slerosis are two VERY different conditions, but M.S. can lead to M.D. over time. Hopefully they caught my M.S. soon enough to prevent M.D. from happenning to me!
I'm sorry for your losses.